See also :
The Handitest's site, a handicap
measuring tool in four dimensions
INFORMATIONS about the Ehlers-Danlos Syndrome (EDS)
Covid-19 and Ehlers-Danlos Syndrom:
Coronavirus - Covid-19: Practical advice for people with Ehlers-Danlos (inherited connective tissue or collagen disease)
(PDF document. Size: 510 ko) Ehlers-Danlos and respiratory function. Clinical data on a cohort of 5,700 patients: oxygen therapy and physical rehabilitation medicine (P.R.M.). By Régine Brissot, MD PhD, Richard Amoretti, MD, Lucette Ducret, MD, Claude Hamonet, MD PhD.
Journal of Neuroscience and Neurological Surgery,
March 27, 2020.
Childbirth and Ehlers-Danlos syndrome: Practical advice
How to prevent and treat Ehlers-Danlos syndrome, a medico-social emergency. A twenty years experience.
Prs. Claude Hamonet & Daniel Manicourt.
International Symposium on the Ehlers-Danlos Syndromes. Ghent (Belgium), September 26–29, 2018.
Semiological questioning: Ehlers-Danlos an ignored stiff or steep syndrome? The role of hypermobility in the diagnosis of the disease/syndrome of Ehlers-Danlos. A necessary reality check facing the observation of the clinical facts. September 2012.
(PDF document. Size: 1.03 Mo) Contribution to Clinical Diagnosis - A Prospective Study of 853 Patients.
(PDF document. Size: 324 ko) Ehlers-Danlos, an Unknown and Disturbing Syndrome. Free Comments.
(PDF document. Size: 1.3 Mo) Ehlers-Danlos-Tschernogobow Syndrome: A Frequent, Rarely Diagnosed Disease whose Patients are often the Victim of an Abusive Psychiatrization.
(PDF document. Size: 209 ko) Ehlers-Danlos Syndrome (EDS) type III (hypermobile): validation of a somatosensory clinical scale (ECSS-62), involving 626 patients.
(PDF document. Size: 280 ko.) Ehlers-Danlos Syndrome (EDS) a Diagnostic Trap for the Neurologist, an Iatrogenic Risk for the Patient.
Online French version available
Bone fragility of infant with an Ehlers-Danlos syndrome. From the diagnostic error to the miscarriage of justice.
Symposium on Ehler Danlos cognitivity and psychopathology. March, 17th 2018. Hôpital de la Salpetrière, Paris.
Brain injury unmasking Ehlers-Danlos syndromes after trauma: the fiber print.
Journal of Rare Diseases,
Joint mobility and Ehlers-Danlos syndrome (EDS), new data based on 232 cases.
C. Hamonet, I. Brock,
Ehlers-Danlos Syndrome (EDS), an Hereditary, Frequent and Disabling Disease, Victim of Iatrogenia due to Widespread Ignorance.
International Journal of Emergency Mental Health and Human Resilience,
Vol. 17, No.3, pp. 661-663.
First International Francophone Symposium "Treatments for Ehlers-Danlos Syndrome (EDS)". Meeting Report. Medical School of Paris-East University Creteil, March 7th 2015.
Ehlers-Danlos syndrome: a highly disabling poorly understood incongruous orphan clinical and genetic syndrome which may not be as rare as that.
Ehlers-Danlos syndrome (EDS): a new clinical description. Efficiency of physical medicine and rehabilitation.
Six hundred individuals studied. Abstract /
Annals of Physical and Rehabilitation Medicine
(PDF document. Size: 157 ko.)
Ehlers-Danlos Syndrome or Disease?
Journal of Syndromes, July 2015 Vol.:2, Issue:1.
(PDF document. Size: 839 ko.)
Joint Mobility and Ehlers-Danlos Syndrome (EDS). New data based on 232 Cases.
Hamonet and Brock,
Ehlers-Danlos: about 664 cases. Statistical analysis of clinical signs from
with a Beighton scale ≥ 4/9.
First international Symposium on the Ehlers-Danlos Syndrome. 8-11 september 2012, Ghent, Belgium.
Retractions in Hypermobility type Ehlers-Danlos syndrome. Study on 119 patients. Consequences on Beighton scale, assessment and discussion about its diagnosis relevance.
Poster. First international Symposium on the Ehlers-Danlos Syndrome, 8-11 September 2012, Ghent, Belgium.
Pains in Ehlers-Danlos syndrome (about 644 cases with a Beighton test equal to or greater than 4/9).
(PDF document. Size: 343 ko.) "Is hypermobility healthy?" Joint limitations of lower limbs are also a sign of Ehlers-Danlos syndrome (EDS), results with 252 patients; Contributions of therapeutic compression garments and oxygen therapy (award winning poster); Specialized certificate on Ehlers-Danlos syndrome (SED), a new medical cursus (continuing education) in a French University since 2014. IInd International Congress on Hypermobility, Ehlers-Danlos Syndrome and Pain. 21 to 23 August 2015, São José do Rio Preto, Brazil. (POSTERS)
(PDF document. Size: 157 ko.) "Ehlers-Danlos Syndrome or Disease?" Journal of Syndromes, Avens Publishing Group, July 2015 Vol.:2, Issue:1.
(PDF document. Size: 482 ko.) "Diagnosis and treatments of Ehlers-Danlos-Tschernogubow syndrome. A French experience on 2.340 patients over 17 years." VIII CONGRESO NACIONAL DE ENFERMEDADES RARAS, Simposium Internacional de Familiares y Afectados por Ehlers-Danlos, UCAM Murcia, oct. 17, 2015. Hamonet C., Brock I., Jaussaud R., Bienvenu B., Metlaine A., Vlamynck E., Haïdar R., Gompel A., Baeza-Velasco C. (Slides-Presentation)
(PDF document. Size: 231 ko.) 2nd INTERNATIONAL CONGRESS on HYPERMOBILITY, EHLERS-DANLOS SYNDROME and PAIN, São José do Rio Preto, Brazil, August 2015. “Is hypermobility healthy?” Joint limitations of lower limbs are also a sign of Ehlers-Danlos syndrome (EDS). Results with 252 patients. (POSTER)
(Powerpoint presentation. Size: 1 Mo.) The Ehlers-Danlos Syndrome (EDS). Bird meeting, Hôtel-Dieu Hospital, Paris, ASED, 06/09/2012. By Claude Hamonet and Monique Vienne (IMAP, Nice).
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© Claude Hamonet 2002-